Characterizing Risk Factors for Burden in Caregivers to Individuals with Alzheimer’s Disease and Frontotemporal Dementia

Presenter Type

UNO Graduate Student (Doctoral)

Major/Field of Study

Gerontology

Advisor Information

Janelle Beadle

Location

MBSC306 - G (Doctoral)

Presentation Type

Oral Presentation

Start Date

24-3-2023 9:00 AM

End Date

24-3-2023 10:15 AM

Abstract

Background: Due to the stressful nature of caregiving, family caregivers are at greater risk for physical and mental health conditions than non-caregivers. Greater caregiver burden (i.e., perceived financial, social, physical, and emotional strain associated with caregiving) can negatively impact caregiver health and well-being.

Methods: This pilot study investigated the degree to which caregiver burden is affected by dementia type and relationships with loneliness and emotion regulation. Participants included three older female caregivers (mean age = 70.3) whose care recipients had a diagnosis of Alzheimer’s disease (AD), frontotemporal dementia (FTD), or mild cognitive impairment (MCI). Each participant completed online questionnaires assessing demographic and caregiving characteristics, caregiver burden, loneliness, and emotion regulation.

Results:We found that the caregiver whose care recipient had a diagnosis of FTD reported the highest level of burden, followed by lower burden in the caregiver providing care to the recipient with AD, and little to no burden in the caregiver providing care to the recipient with MCI. Furthermore, the caregiver with the highest level of burden also had the highest level of loneliness and suppression of emotional expressions (a type of emotion regulation).

Conclusions: This pilot study provides preliminary evidence that caregivers to individuals with FTD have higher levels of burden, loneliness, and emotion expression suppression than caregivers to care recipients with AD or MCI. Future research plans include additional data collection to acquire a larger sample, as well as examining the degree to which caregiver burden is affected by caregiver characteristics, age, and gender.

Scheduling

9:15-10:30 a.m., 10:45 a.m.-Noon, 1-2:15 p.m.

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Mar 24th, 9:00 AM Mar 24th, 10:15 AM

Characterizing Risk Factors for Burden in Caregivers to Individuals with Alzheimer’s Disease and Frontotemporal Dementia

MBSC306 - G (Doctoral)

Background: Due to the stressful nature of caregiving, family caregivers are at greater risk for physical and mental health conditions than non-caregivers. Greater caregiver burden (i.e., perceived financial, social, physical, and emotional strain associated with caregiving) can negatively impact caregiver health and well-being.

Methods: This pilot study investigated the degree to which caregiver burden is affected by dementia type and relationships with loneliness and emotion regulation. Participants included three older female caregivers (mean age = 70.3) whose care recipients had a diagnosis of Alzheimer’s disease (AD), frontotemporal dementia (FTD), or mild cognitive impairment (MCI). Each participant completed online questionnaires assessing demographic and caregiving characteristics, caregiver burden, loneliness, and emotion regulation.

Results:We found that the caregiver whose care recipient had a diagnosis of FTD reported the highest level of burden, followed by lower burden in the caregiver providing care to the recipient with AD, and little to no burden in the caregiver providing care to the recipient with MCI. Furthermore, the caregiver with the highest level of burden also had the highest level of loneliness and suppression of emotional expressions (a type of emotion regulation).

Conclusions: This pilot study provides preliminary evidence that caregivers to individuals with FTD have higher levels of burden, loneliness, and emotion expression suppression than caregivers to care recipients with AD or MCI. Future research plans include additional data collection to acquire a larger sample, as well as examining the degree to which caregiver burden is affected by caregiver characteristics, age, and gender.